Rare Disease

Latest News

FDA Gives Go-Ahead on Quoin Pharmaceuticals’ QRX003 Netherton Syndrome Study
FDA Gives Go-Ahead on Quoin Pharmaceuticals’ QRX003 Netherton Syndrome Study

December 19th 2024

The "whole body" study at Northwestern will be lead by Amy Paller, MD, begins soon.

FDA Sets PDUFA Date, Accepts BLA Submission for Pz-cel in Epidermolysis Bullosa
FDA Sets PDUFA Date, Accepts BLA Submission for Pz-cel in Epidermolysis Bullosa

November 12th 2024

Benvitimod is Safe for Palmoplantar Pustulosis, New Study Finds
Benvitimod is Safe for Palmoplantar Pustulosis, New Study Finds

October 29th 2024

Breakthrough CRISPR/Cas9 Technique Achieves 95% Exon Deletion for Epidermolysis Bullosa Treatment
Breakthrough CRISPR/Cas9 Technique Achieves 95% Exon Deletion for Epidermolysis Bullosa Treatment

August 6th 2024

Pediatric Emergency Department Visits with Dystrophic Epidermolysis Bullosa More Frequent in Summer; Hospitalization Rates Exceed 50%
Pediatric Emergency Department Visits with Dystrophic Epidermolysis Bullosa More Frequent in Summer; Hospitalization Rates Exceed 50%

July 29th 2024

Latest CME Events & Activities

21st Annual International Symposium on Melanoma and Other Cutaneous Malignancies®

February 8, 2025

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Expert Illustrations & Commentaries™: Picturing the Potential Role of OX40 and OX40L Inhibitors in Atopic Dermatitis

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Hidradenitis Suppurativa (HS): Deepening Foundations of Knowledge in Disease Pathogenesis, Disease Severity Assessment, and Treatment Decision-Making

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Clinical Consultations™: Optimizing Treatment Outcomes for Patients with Generalized Pustular Psoriasis

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Advances in™ Atopic Dermatitis: Addressing Unmet Needs in Patients With Skin of Color

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Clinical Consultations™: Guiding Patients with Genital Psoriasis Toward Relief Through a Multidisciplinary Approach

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Patient, Provider & Caregiver Connection™: Understanding the Patient Journey to Provide Personalized Care for Generalized Pustular Psoriasis

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Cases and Conversations™: Applying Practice Techniques to Optimize Diagnosis and Treatment Strategies in Generalized Pustular Psoriasis

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Cases and Conversations™: Applying Best Practices to Prevent Shingles in Your Practice

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‘REEL’ Time Patient Counseling™: Fostering Effective Conversations in Practice to Create a Visible Impact for Patients Living with Genital Psoriasis

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Dermalorian™ Webinar: Shedding Light on Patient-Reported Outcomes to Assess Disease Severity in Patients With Atopic Dermatitis

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Where Do Biologics Fit Into the Management of Moderate-to-Severe Atopic Dermatitis?

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